The You are not alone! program concept

The Foundation in conjunction with RCCH began its implementation of the You are not alone! program in September 2005. The goal of the program is to provide assistance to orphaned children with physical limitations in need of high-tech and expensive treatment. The program has particular social importance as it deals with many children who, as a result of up-to-date qualified treatment, become productive members of society. It should be noted that no other program in Russia seeks out and treats seriously ill orphaned children on the same scale.

Some statistics

  • According to official statistics there are about 150,000 orphaned children and children left without parental care in Russian specialized centers.  Moreover, about 650,000 children live in foster families of various types.
  • According to Ministry of Health and Social Development data, as of August 2009 there were 545,000 disabled children in Russia, 12.2% (66,490 ) of them live in special orphanages.
  • According to unofficial statistics, 12-18 thousand newborn babies are abandoned in Russia every year. One of the 5 most common reasons for abandonment is congenital defect. i.e., approximately 2-4 thousand abandonments are due to birth defects. There is no statistically certain data on the types of defects. But experience has shown that they are typically diseases related to the central nervous system, metabolic genetic diseases, defects resulting from birth injury, ICP and also visual defects (harelip, facial cleft, etc.). Some of these diseases can be successfully treated nowadays, but mothers do not always have enough information.

The program’s field

  • The level of health care service outside Moscow does not always provide the assistance required to a foster child from an orphanage or a children’s home. The situation is worsening due to the absence of additional financial and organizational instruments in the orphan institutions’ administration. Where children with families can count upon their parents, an orphaned child sometimes does not have anybody  to expect help from.
  • The diagnosis of serious diseases in orphaned children that require highly qualified treatment is sometimes not available outside Moscow but only in RCCH or other federal medical centers, and is particularly important.
  • Orphanages are not always able to transfer a sick child to Moscow and back with the attendant they need.
  • In most cases there are few possibilities at the local level to provide post-hospital rehabilitation or medical care for a seriously ill orphaned child. Frequently the results achieved by Moscow doctors come to nothing after the child has been sent back.

During hospital treatment, an orphaned child needs additional care, attention, and support. There is also the question of improving their physical condition to the level required for surgery.

 

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