Programs 1989 – 2010

History of our programs development.

Our main program is helping people

During the early years of our work it was hardly possible to say we had any programs. Our actions were based on the real and urgent needs of patients and their families, we were responding to the challenges brought by each new day. There were very few of us, and each of us was on call all the time. Our main program was to help children by any means available. Attention. Medicine. Humanitarian aid.

In retrospect, it seems that certain areas of work were already developing at the initial stage, and have been present in our activities ever since. Our attention has always been focused on helping the most deprived, including orphaned children.

The main sources of donations were foreign funds and NGOs as well as individuals from abroad.

We were building up our own experience, while the charity practice in our country was developing.

From the child to infrastructure and new technologies, and back to the child

Having broadened our possibilities over the course of time, having learnt a lot and understood how the hospital lives and “breathes”, with the support of a growing number of people, we felt the power not only to fight for each life with the doctors but also to start helping the hospital departments gradually improve their material resources and develop their facilities. Thus, we have realized that a more integrated approach was necessary.

In 1995, for the first time the Foundation started consistently renovating the hospital’s departments, and purchasing new equipment supporting the development of the hospital infrastructure (the renal transplant, general hematology, oncohematology, immunology and oncology departments). At the same time we realised that in this way we were providing help of a different kind and quality.

That is how the “Hospital – Foundation” system started to take shape. The time came for us to participate in the development of medical technology. Since 2001 we have been financing selective screening for inherited metabolic diseases under the auspices of the psychoneurology departments and together with the Laboratory for Inherited Metabolic Disorders at the Research Centre for Medical Genetics at the Russian Academy of Medical Science.

The Support program for unrelated bone marrow transplantation has been running since 2003 at the Russian Children’s Clinical Hospital with the assistance of our Foundation. This program has made it possible for this process to take place on a regular basis. Together with the doctors we have entered into cooperation with the The Stefan-Morsch-Stiftung to search for unrelated donors of bone marrow for transplantations, and we have organized the fundraising necessary to search for donors abroad. Our Foundation provided support for establishing the Laboratory for High-Resolution Histocompatibility Typing, started regular funding for blood infection diagnosis and later for chimerism research, necessary when carrying out bone marrow transplantation.

www.deti.msk.ru

An important stage for the Foundation was the launch of its own website in 1998 aimed at fundraising for the treatment of particular children. Our website was a first on the Russian Internet, and it is clear today that it made a significant impact on the development of the charitable sector on the Russian web.

Thanks to the website, the structure of the Foundation’s financial sources began to change. The number of private donations grew, and the website expanded our contacts with mass media and other nonprofits.

The Big and Small Program

Having fully mastered the basic forms of charitable work in the hospital, we gradually started turning to one- or two-year programs and projects. Thus the programs VIP Hospital Visits and Clown Therapy were developed. Traces of the results of these programmes can be still seen today in the work of other charities. For us they were to become the source of a more profound evaluation of the charity’s potential at the hospital.

Problems were emerging that demanding more serious and considered decisions as well. It was a really difficult time for the Foundation in terms of scale and scope when the Russian Children’s Clinical Hospital admitted children injured in Beslan. It required our mobilization and involved maximum resources. The Children of Beslan program provided care for 60 children, who received comprehensive support from hospital specialists and psychologists, and went to Italy for rehabilitation. This experience became the platform for launching a long-term program of assistance to orphaned children.

This program was called You are not alone! Its aim is to organize the treatment of seriously ill orphans; that is to search, select, transfer, support, rehabilitate, provide social adaptation and so on. Later, the At Dunno’s rehabilitation center was built under the program.

The decision to open a country recreation home for orphaned children was also prompted by the experience that the Foundation gained while developing the House of Hope program (2006).Within this program the first recreation center for ambulant young patients with oncohematological diseases was built and launched. These programs have become long-term and promising.

At the moment all activities of the Foundation are structured according to the program-and-project principle: specific goals, methods and expected results. There are 6 working programs in 3 areas.

 

 

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