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Since the end of 2005, our foundation has been working on the You Are Not Alone
program for providing medical aid to children without parents. During this period,
about 250 children have received treatment at our hospital. For further development
of the You Are Not Alone program, it is necessary to have a rehabilitation center in the countryside
near Moscow, which will enable us to fulfill the following tasks:
- To provide long-term multistage treatment at the Russian Children's Clinical Hospital to a larger number of children;
- To perform long-term treatment without problems;
- To raise the efficiency of treatment and to improve the quality of the patients' lives.
It often happens that one or another child needs multistage treatment with one- or several-month
breaks between the courses. For these periods, the children have to return to their orphanages,
where due care and necessary medications may be impossible to provide. And it may happen
that the doctors' efforts will be in vain just for this reason and treatment should be started
from the very beginning.
On the basis of this rehabilitation center, we are also planning to provide psychological
help to children in a difficult situation. Orphan children are often admitted to hospital
with serious psychological problems. In a new environment, during difficult treatment,
they suffer from additional stresses, which affect their condition and hamper the process
of medical aid and rehabilitation. Professional psychological aid will help the children
adapt and recover after the treatment.
The three-storey building will have 15 children's bedrooms, two dining-rooms, two
playrooms, and a classroom for studying. It will simultaneously host 15 to 20 orphan
children and 10 people who will take care of them and of the house.
On September 29, 2009, the official opening ceremony at the new rehabilitation
center for orphan patients took place. We whole-heartedly all who helped in this
large-scale and important work!
Here are the links to the detailed desription of the ceremony
and the photo gallery.
14.09.2009 The entire sum required to buy the electric power generator
for the new rehabilitation center has been raised! We whole-heartedly thank Natalia and Elena, who
have provided the required sum.
24.08.2009
Our new rehabilitation center urgently needs your
aid!
It already hosts six orphan patients with nurses and six other children who are presently undergoing
out-patient treatment at the Departments of Oncology and Oncohematology. Unfortunately,
it turned out that the supply of electricity to the settlement where this center is located is sometimes
interrupted (although the local administration had denied the existence of this problem!). But the water
supply system, the heating system, and all medical appliances at this center depend on electricity.
It means that an autonomous electric power generator should be purchased as soon as possible, before
the weather becomes cold, just as it was done in the House of Hope
cottage. This generator costs about 500,000 roubles ($15,875). Financial
help for purchase of this generator is urgently needed!
 15.06.2009
The first children came to the new rehabilitation
center for orphan patients. They are
Denis,
Tanya,
Milena, and
Eva. Soon
Ilya will join them.
2.04.2009
The contruction of the house has been completed. We are trying to make the interior
design of the bedrooms, playrooms, dining-room, and classroom as comfortable
and homelike as possible.
The rehabilitation center is to be opened in May. Seven orphan patients are going to inhabit it during the next few months:
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Galya B., 8 years old (Department of
Maxillofacial Surgery). Diagnosis: midface hypoplasia.
Surgical intervention performed. In the postoperative period, the girl needs individual out-patient
care for two months to follow strict hygienic requirements and to exclude injuries.
Life at an orphanage is forbidden for her during this period. |
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Eva Z., 2 years old (Department of
Clinical Immunology). Diagnosis: primary immunodeficiency. After selection
of a combination of efficient medications for her therapy, she will need out-patient
observation for at least three months. |
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Ilya K., 8 years old (Department of
Microvascular Surgery). Diagnosis: consequences of large-area thermal burn.
Transplantation of a large skin flap is required. The child will have to wear an
expander for skin flap formation over eight months. The child should not
spend this period of time at an orphanage without due care.
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Milena L-na, 7 years old (Department of
Microvascular Surgery). The child has an extremely grave congenital vascular disorder:
Klippel-Trenaunay-Weber syndrome, or elephantiasis. The child has been receiving
treatment at the Russian Children's Clinical Hospital since June 2006. She has undergone
several surgical interventions at our hospital and rehabilitation courses in Moscow
and Berlin. She lives in Yakutsk, where the necessary treatment and rehabilitation are not
available; at her age, she is to be transferred to a special orphanage for disabled
persons, where prospects of future life for her are extremely grim.
Living at a rehabilitation center affiliated with the Russian Children's Clinical Hospital,
Milena will receive constant medical control of her condition, rehabilitation, and
school education (the girl has completely normal intellect; she can and should study at school).
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Masha K., 3 years old (Department of
Oncohematology). Her intensive chemotherapy will be over in May. After it, she is to receive
out-patient maintenance chemotherapy for 8-9 months with weekly blood controls at the hospital
department. Due control at her orphanage during this period will be impossible.
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Pavel T-v, 6 years old (Department of
Maxillofacial Surgery), is undergoing the second stage of reconstructive treatment on skull
bones. This treatment requires usage of a distraction appliance for at least two months.
During this period, he will need regular out-patient control with strict hygienic requirements
and exclusion of any injuries. Fulfillment of these requirements at an orphanage is impossible.
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Katya M-va, 12 years old (Department of
Nephrology). She gets in-patient treatment courses each quarter. Presently she is being
treated with a new drug. Adaptation to this new therapy for 2-3 months is necessary.
However, the girl need not stay at the hospital during all this time.
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