Deputy Director of the Institute of Pediatric Hematology, Professor Alexey A. Maschan, says:
Experience and time show that no improvement of the situation in our
country, no federal financing can make Russian medicine really up-to-date.
Unfortunately, the very organization of the Russian health care system
and the method of its financing are not favorable for the introduction
of new technologies. Only the help of private foundations and groups
indeed makes it possible for us to move forward.
Unrelated marrow transplantation, an extremely promising treatment
method, was implemented in our hospital solely thanks to the Charity
Foundation of the Help Group. This group of enthusiasts and volunteers,
as well as numerous benefactors and sponsors, ensured the survival of
this cause when we had no other financing at all. Thus, our team and
technology were preserved, and many lives were saved. Many people who
supported us in difficult times are well-known to us, yet many are not.
As a rule, these people are modest and unwilling to reveal their personalities
or names. But we are just infinitely grateful to all of them.
Human concern and friendly attitude are especially necessary for the
young patients of our hospital and their parents. Unfortunately,
official psychotherapeutic services are absent in Russian hospitals.
In this situation, the work of the Help Group becomes absolutely necessary.
Its members support children and parents, who would otherwise have to
face their trouble all alone, and help them carry the enormous psychological
burden, which is immeasurably heavy, much heavier than even the financial
burden...
When the Help Group made its Internet site, I didn't believe in this
technology and thought it was too impersonal. However, in our present
conditions, "electronic charity" (if this term is suitable)
has proved efficient. Having visited many hematology hospitals in our
country, knowing their problems, I can say that the Web site of the
RCCH Help Group is absolutely unique. I think that it would be wondeful
to spread this form of charity activities as wide as possible.