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Vlada Drozdova |
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I am Alexandra Zharova, mother of Vladislava Drozdova. My child has been getting treatment
virtually since the first days of her life. Presently her disorder has been precisely diagnosed,
and bone marrow transplantation is necessary.I cannot pay for this operation myself, because it costs an enormous sum: 15,000 euro. Please help us! With hope and gratitude, Note: a matching donor for Vlada has been found. Bone marrow transplantation is planned for January. Search for an unrelated donor has already been performed in the Stefan Morsch register. Now we must pay for this search and subsequent graft harvesting. The doctor's commentA joint meeting of specialists of the Russian Children's Clinical Hospital, including Deputy Head Physician I.B. Bryusova, Deputy Director of Institute of Pediatric Hematology, Oncology, and Immunology A.A. Maschan, Head of the Department of Marrow Transplantation E.V. Skorobogatova, neurologist S.V. Mikhailova discussed further therapy of patient Vlada Drozdova, born Feb 25, 2008, who has been diagnosed with mucopolysaccharidosis type 1 (Hurler's syndrome). The joint meeting decided that allogeneic transplantation of hematopoietic stem cells is the only method of curing this condition. Since the child has no related HLA-matching donor, search for a hematopoietic stem cell donor should be performed through an international register. In case a donor is found, the date of admission to the Department of Marrow Transplantation will be immediately determined.
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News25.01.2010 On January 21, Vlada Drozdova underwent bone marrow transplantation from an unrelated donor. We thank all people who donated money for the girl and thus enabled the doctors to perform this transplantation in due time! 25.12.2009 We are completing the fundraising for the benefit of Vlada Drozdova. The money for donor search and graft harvesting will be transferred to the account of the Stefan Morsch Foundation in the nearest few days. We thank all who have helped! They have helped |
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