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Stanislav Andryukov

Dear readers,
I am the mother of Stas (Stanislav) Andryukov. My name is Anna. My dear child is four years old. When he was just five months of age, we learned his horrible diagnosis at a local hospital, in the Kemerovo region. It is a hereditary lesion of the nervous system.
We were admitted to the Russian Children's Clinical Hospital in Moscow only this year. Physicians at the Department of Psychoneurology told me that the only way of curing my child is to find a donor and to perform subsequent marrow transplantation. But I was simply dumbfounded which I heard the cost of this operation. 15 thousand euro! I have no such sum. Yes, I have a job, but even my entire yearly income will not be enough. Please help us in our trouble. And thank you for your concern in any case.

Yours respectfully,
Stanislav's mother Anna Andryukova
November 22, 2007

 

The doctor's comment


Stanislav Andryukov, born 2003, has been a patient of the Department of Psychoneurology-2 since October 10, 2007. His diagnosis is Krabbe leukodystrophy, a degenerative disorder of the nervous system. The only possible method of curing this disease is allogeneic hematopoietic stem cell transplantation, which should be performed as soon as possible. Now urgent search for a matching stem cell donor in international registries is required, after which the patient is to be admitted to the Department of Marrow Transplantation of the Russian Children's Clinical Hospital.

Head of the Department of Psychoneurology-2
Elena S. Ilyina

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News

14.06.2008 Tragic news: Stanislav Andryukov died of complications after unrelated marrow transplantation. It was his only chance, but, alas, it did not work.

16.01.2008 We have completed the fundraising for donor search and stem cell harvesting for the treatment of Stas Andryukov and Liza Pugacheva. The sum raised for Liza is 285,405 roubles ($11,649), which is less than necessary. The sum raised for Stas is 758,650 roubles ($30,965), including 540,000 roubles ($22,040) transferred by the administration of the town of Taiga, where the boy lives. The extra money available for Stas will be readdressed to Liza. The money required for donor search, that is, 5000 euro for each child, have already been transferred to the account of the Stefan Morsch Foundation, and search has been started. The remaining part of the sum (10,000 euro for stem cell harvesting) will be transferred after the donors are found.


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Many thanks to all who have responded!