A
letter from the mother of Sasha Melnikov, a patient
of the Department of Oncohematology. "My name is Natalya.
My son Sasha Melnikov was born on April 8, 1994. Now he is eleven.
He was born a healthy and lively kid, not too large, but very merry
and curious. He went to a kindergarden and then to school together
with other children of his age, and they always liked him for his
kind heart. Not that he was very enthusiastic about schooling, but,
being so quick-witted, he easily coped with all his studies.
Our troubles started on the eve of New Year 2002. Sasha had a spinal
trauma: compression fracture of a thoracic vertebra. I don't know
if this trouble was related to the other one, but our further ordeal
was much worse. At the RCCH, another diagnosis was confirmed: lymphocytic
leukemia.
And Sasha, after a life full of movement and merryment, became
bed-ridden. He was on traction for four months, receiving chemotherapy
at the same time. May 2002 was the first time when we were allowed
to take Sasha home. He had to learn to walk again. However, the
will to move, to rejoice, to smile at the sun, to laugh at all his
difficulties never left him.
Sasha's supporting therapy ended in March 2004. We were so glad!
Throughout spring and summer, we rejoiced at life and looked forward
to the new school year. We planned his school days, discussed the
learning conditions, argued whether he should go to school together
with other children or continue individual studies...
But, on August 28, 2004, Sasha felt unwell. He had a pain in his
back, fever, then a bleeding. I prayed to God, asking him to save
us from a return of the same tragedy. But we had to go through one
more ordeal. Relapse of leukemia. Again the hard days at hospital,
again the days of expectations, again waiting for an improvement.
Sasha was really depressed when he learned of his future treatment:
the doctors insist that there must be not only chemotherapy but
also marrow transplantation. Otherwise, Sasha may die.
Now our aim is to reach remission and to start the search and activation
of a bone marrow donor at the German data bank. So, the necessary
sum is to be raised.
The Help Group of the RCCH immediately offered us help in fundraising.
They quickly organized telecasting of Sasha's story in the Zdorovye
(Health) program of the RTR TV channel (February 13, 2005). Many
people have already responded.
We, Sasha's parents and relatives, are impatiently waiting for
the moment when the donor is found at last. And we are very grateful
to kind, sympathetic, compassionate people who want to share our
grief and help us save Sasha.
Sasha does not lose hope, patience and optimism. He wants to swim,
play computer games, run on the grass, look at the sun and feel
its warmth, just like all other children.
23.08.2005 Sasha Melnikov had unrelated marrow transplantation.
Everything went more or less well. But one cannot say anything about the
results for at least a month. Sasha's chances are not so good as we would
like to hope, but still he is ready to struggle.
27.10.2005 Sasha Melnikov died. He spent the last several weeks
at the resuscitation ward. He had unrelated marrow transplantation
on August 23. His condition as to his main disease was regarded as
very dangerous. The doctors understood all the risk of transplantation,
but it was Sasha's last hope. Alas, the disease was stronger.
Sasha was our beloved friend. So optimistic, so interested in everything,
so radiant. He turned 11 this spring.
Another
patient of the Department of Oncohematology is Masha Gudimova.
She recently celebrated her third birthday. The whole department
congratulated her. Volodya Shishkarev (as always, with his synthesizer)
came, there was singing and dancing in the hall, the little kids
arranged dancing rings and tried to catch colored balloons.
One girl of seven, who arrived at the department not long ago,
was surprised to see such joy among the children and asked, "How
can they be so happy at hospital?" In future, she will also
understand that this hospital will become a home for her for a long
time. She will just live there and see both ordinary and festive
days, both severities and joys.
And little Masha has known no other home in her life. All her three
birthdays took place at the hospital. Masha has congenital leukemia.
Chemotherapy didn't help, and now Masha is getting prepared for
marrow transplantation. Search for an unrelated donor has begun.
The staff of the Serebryanyi dozhd (Silver Rain) radio station are
helping to raise the funds for Masha's treatment.
A letter from Olya, Masha's mother:
"In May 2002, we came to the RCCH for treatment from the town
of Starodub, Bryansk region. This region was affected by the Chernobyl
disaster. Those who have never experienced anything like this will
hardly understand how difficult our treatment is. Chemotherapy,
which makes all blood counts decrease, which takes away the child's
immunity and makes her completely unprotected, when even a running
nose presents trouble for six months and an intestinal infection
can just kill you. When the first, long-awaited tooth appears after
your child turns 18 months and the first steps are made when she
is two years old. When strangers who don't know about our troubles
say that the girl is probably six months old - and she is three
times this age. When a child doesn't know what hair is, when a face
mask is something that is always with her...
It
is so terrible when your only, longed-for, best-loved child just
lies in bed and cannot move her hand or head, when her eyes express
nothing...
People who have never gone through anything like this can hardly
imagine how difficult it was for Masha's father to find a job in
Moscow (in Starodub, it is impossible to earn money that would be
sufficient for my and Masha's stay in Moscow). Or imagine that his
first monthly salary in Moscow was 3000 roubles (a little more than
100 USD), while he worked as a loader for 12 hours a day.
My little kid loves drawing and listening when we read books to
her. Her eyes look so smart! Just like any parents, we dream of
a happy future for her. But will there be any happy future?"
We believe that it will be in spite of everything. We'll do all
things possible for this.
Happy birthday, little Masha! Dear mother Olya, we wish you strength
and optimism!
20.06.2005 On Saturday, June 18, at 1 a.m., the donor marrow
for Masha Gudimova was received from Germany. The transplantation took place
at 6 a.m. The doctors did not wake up the girl; everything happened in her
sleep.
16.07.2005 Alexei bought Cancidas worth 129,000 roubles (over $4300)
for Masha.
10.08.2005 Masha Gudimova returned from the Department
of Marrow Transplantation to the Department of Oncohematology-16 yesterday.
Engraftment of the donor marrow has taken place, and the little girl is
gradually getting used to life outside her sterile ward.
15.09.2005 Masha has been allowed to go out. She is still very
weak and cannot walk by herself.
17.11.2005Nine days have passed after Masha Gudimova's death.
It is so impossible, so terrible and unjust, that we just couldn't write
about it during all these days.
Everything happened quite unexpectedly. She was recovering after the
transplantation more or less as she should. The donor marrow started
working. There was periodic fever and manifestation of the graft vs.
host disease, but they were within normal limits for the posttransplantation
recovery period.
And suddenly Masha's kidney ceased to function. Acute renal insufficiency
developed so fast that it was impossible to save the child.
Masha was a carrier of the Epstein-Barr virus. This virus is harmless
for most healthy people, but it became deadly for a child without
immunity.
Masha's short life was all spent at the hospital. The Gudimov family
lived at the RCCH for three years. For all these years, the parents
struggled for their child's life together with the doctors. For three
years, only hope gave them strenght. They raised their little beauty
and supported all other mothers at the department. Here, Masha was an angel
for all of us. Now there will be one more angel in heaven.
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