30.05.2010 We have completed the fundraising for the benefit of Arina
Zherdeva, Kira Bulbak, and
Sofia Kharitonova. Thank you for
your aid! The appliances for the girls have been ordered and will be delivered in the nearest few days.
28.05.2010
On May 12 and 13, 2010, a team of physicians from the Russian Children's Clinical Hospital visited Vologda,
a city in northeastern part of European Russia, within the You Are Not Alone
program. The team was headed by Irina V. Kondratenko, Head of the Department of Clinical Immunology,
and also included an endocrinologist, an allergologist, an orthopedist, and a neurologist. The specialists
examined children from four orphanages located in Volodga and the surrounding region, and also
orphans who are presently under foster care in families. A total of 262 consultations were given,
and the necessary therapy was prescribed or adjusted. In the most complex cases, the children
were referred for treatment at the Russian Children's Clinical Hospital and other medical institutions in Moscow.
Continued...
26.05.2010. Some news about orphan patients of our hospital.
Three of our former patients have recently been readmitted to the hospital for follow-up treatment:
Katya M-va, to the Department of Nephrology;
Slava U., to the Department of Maxillofacial Surgery (where specialists
will put braces on his teeth); and Vlad K.,
to the Department of Neurosurgery.
24.05.2010 Good news from Spain: Nikita has undergone a difficult but
successful surgical operation on his chest. The sutures have already been removed, and the boy is recovering. Some time ago he could not even taste
solid food owing to a serious congenital pathology. And now he can eat anything with pleasure and without any problems.
The boy is feeling fine. We are looking forward to his arrival in Moscow at the end of this week.
17.05.2010 About orphan patients of our hospital.
Danya A. has been discharged after treatment. He wears glasses now and feels
very proud of this. About a year later, he will come for a check-up.
16.05.2010 In April 2010, our Foundation provided financial aid to the hospital and its patients for a total of
2,607,673.16 roubles (approx. $84,950). The sum transferred from the account of the
Regional Public Charity Foundation for Seriously ill and Abandoned Children
was 2,411,806.72 roubles, and private persons directly donated 195,866.44 roubles:
Roman helped buy Exjade for Marina Revenkova and Andrei
Chipilev. Continued...
12.05.2010 Some news about orphan patients getting treatment within the You
Are Not Alone program.
Ira G. has been sent to the Childhood Rehabilitation
Center after completion of her treatment.
Nikita Ya., accompanied by Natalia Artemieva (member of our
foundation responsible for programs concerning orphan patients), has left for Barcelona, where he will
undergo a difficult surgical operation. This was his first journey by plane, and Nikita is full of impressions.
We all hope that his operation will be successful and he will return to Moscow in good health.
Pavel T-v has been discharged from the Russian Children's Clinical Hospital
and transferred to a hospital at his place of residence (Ivanovo region). A year ago Pavel was operated by our surgeons;
however, serious alterations in brain tissues and vessels that had emerged during his life owing to a cranial malformation
caused a number of complications. The boy has undergone long treatment at the Russian Children's Clinical Hospital,
and now constant medical observation is necessary. We will closely follow all events in Pavel's life and hope that he
will be all right.
A wonderful new boy from the Komi Republic has been admitted to the Department
of Endocrinology. Danya A. is five years old. He is very active and inquisitive,
but at the same time patient and obedient.
29.04.2010 Some news about orphan patients of the hospital getting treatment within
the You Are Not Alone program.
The fundraising for Slava U. is over. Yesterday
a sponsor, who wanted to stay anonymous, handed us the entire remaining sum to pay for the boy's
orthodontic braces. We are deeply grateful to him.
Anya P.
has left the hospital after a rehabilitation course at the new rehabilitation center. Several months
later she is to arrive for the second surgical operation, which will make her completely
healthy.
28.04.2010 We are interrupting the fundraising for bone marrow transplantation to Arsenii
Zhurbenko. No donor has been found so far, and the prospects of the transplantation are still unclear.
26.04.2010 The fundraising for the benefit of Sofia Danilova
has been completed. Thank you for your compassion and aid! The medication for the girl has been ordered,
and it will be delivered to the hospital in the nearest few days.
20.04.2010
And what about the life of our patients at the new rehabilitation center?
We haven't told about it for a long time.
Now 12 orphan patients together with nurses live in this cottage. They undergo medical and rehabilitation procedures,
works with specialists in exercise therapy and with psychologists. School-age children visit classes at the local
village school, and visiting teachers come to those children who cannot go to school by bus. A special person
at this rehabilitation center helps the children with their homework and provides them with good books.
Since the weather has become warm, children spend a lot of time outdoors, cycling or playing at the playground.
Volunteers come to them every day and organize various hobby groups: the children draw, make some handiwork,
play the piano, use a personal computer. Recently the building became connected to the internet.
The children also learn cooking, housekeeping and the basics of work with carpenter tools. This is especially
important for children who have no parents to teach them and no home of their own.
See photo gallery: rehabilitation center in April 2010.
* * *
Ilya Polyanskii, a former patient of our hospital, visited us together with his grandmother.
He got treatment for nephroblastoma at the Department of Oncology four years ago. We did not specially announce fundraising
for his treatment on our Web site, but at that time we bought the necessary medications for the entire
department so that the children could get vitally necessary therapy in accordance with the medical protocol.
Now Ilya is all right and quite happy. He is studying at an art school. His grandmother handed
us a letter of thanks to all who had helped this friendly family during the difficult time at the hospital.
19.04.2010 Deputy Director of Federal Center for Pediatric Hematology, Oncology, and Immunology Prof. A.A. Maschan
and Head of the Department of Bone Marrow Transplantation E.V. Skorobogatova have asked our Foundation
for aid in purchase of reagents for high-precision molecular typing of cord blood specimens.
The total cost of the reagents is about 135,000 rubles ($4630).
Continued...
16.04.2010 The total sum spent by the Regional Public Charitable Foundation for Seriously ill
and Abandoned Children on purchase of medications, equipment, consumables, payments for examinations
and medical services in March 2010 was 2,379,600.18 roubles ($81,660).
Continued...
This sum includes over 550,000 roubles paid to buy Exjade for patients with hereditary anemias.
We also received direct aid from private persons: Sergei handed 90,000 roubles to buy an insulin pump and a set of consumables
for Nicole Manko within the program for helping children
with insulin-dependent diabetes mellitus; Roman bought Biseptol [co-trimoxazole] worth a total of 225,000 roubles within
the program for support of patients with cystic fibrosis. Thank you very much!
11.04.2010 See the photo gallery showing the Easter Liturgy
at our hospital church:
10.04.2010 Some news about orphan patients of our hospital.
Tanya K. has recovered after an operation at the Department of
Microvascular Surgery. She has been allowed to go back to her orphanage, and in May she will arrive
at the Department of Traumatology and Orthopedics for rehabilitation.
Masha S. has also left the hospital till May. She was so reluctant
to leave her nurse!
Hearing aids have been bought for Natasha G., and now
an audiologist is working with her.
Ira G. (9 years old) from the Vladimir region
has been admitted to the Department of Microvascular Surgery. She has already undergone a surgical operation.
Little Anya P. (1.5 years old) was recently operated at the
Department of Maxillofacial Surgery. Now she is undergoing rehabilitation at the new center.
Our old friend Olya B-na has arrived at the hospital
for the final plastic surgery on her nose. Her orthodontic correction is still going on.
Our doctors are glad to see Zhenya P.'s progress. His physician
Yulia Averyanova says that the boy is fine. His prognosis was poor a year ago: short bowel syndrome is difficult
to treat. But successful reconstructive and plastic surgery on his intestines, together with
rehabilitation, have done a miracle. Now the boy is no longer dependent on infusions and parenteral nutrition.
His life and health are not in danger, and the only thing he really needs is a family. The staff of the
Department of Abdominal Surgery have got to love this kid, and they hope that some time they will
be able to hand this kid into the loving arms of his new parents. The boy is very active and happy.
See Zhenya's photo gallery!
Presently there are 13 orphan patients at the hospital; 6 nurses hired by the Foundation take
care of them. Also, there are 8 orphan patients at the new rehabilitation center.
10.04.2010 Head of the Department of Coloproctology
A.L. Ionov has asked our Foundation for financial aid in purchase of equipment for this department:
"For adequate diagnosis and treatment of colorectal disorders in children, it is necessary to perform a combined
functional examination of rectal function and condition of pelvic floor muscles (anorectal manometry etc.).
Continued...
Presenly, unfortunately, the apparatus formerly used for such examinations has already become
overage and obsolete. Consumables for this equipment are no longer produced. In addition,
its technical condition is unsatisfactory because of frequent breakdowns and subsequent maintenance works.
However, specialized aid to children with coloproctologic problems at the Russian Children's Clinical
Hospital will be impossible without such equipment!
A new apparatus for these diagnostic procedures is required. It costs at least 40,000 euro."
Our charitable foundation
is launching a new program: help for children with combined allergic disorders (dermatorespiratory syndrome).
The use of a new drug, Xolair, makes it possible to achieve marked improvement in the condition of such children. Unfortunately,
this expensive drug is not presently provided to the hospital at the expense of the stage budget.
9.04.2010 Head of the Department of Maxillofacial Surgery
A.V. Lopatin has asked our Foundation for aid in purchase of instruments:
"
Please consider providing aid in buying a shadowless operating lamp for the surgical dressing room
of the Department of Maxillofacial Surgery. We need this lamp to perform certain procedures
on children under anesthesia. These are children getting treatment for maxillofacial, ophthalmologic,
and neurologic disorders. The cost of the lamp is about 550,000 roubles ($18,875).
In view of our longstanding and fruitful cooperation in helping seriously ill children,
considering also your participation in the foundation and work of our Department of Maxillofacial
Surgery, I hope for your understanding and aid".
8.04.2010 Head of the X-ray Department Tatiana E. Netsvetaeva has handed us a letter of thanks
to our Foundation for participating in fundraising for purchase of Mobile DaRt
Evolution X-ray setup.
6.04.2010 This Saturday, just before Easter, Varya Bondarenko
died. It all happened very fast, even before her condition has diagnosed and treatment could be started...
26.03.2010 Recently our old friend Stanislav Brynza came to
our hospital for a check-up. Fortunately, he is all right and in excellent spirits. He handed us his
new photograph and a letter for children who are now getting
treatment at the Russian Children's Clinical Hospital:
"I wish all the children to recover! I was also treated at this hospital. It was a very difficult
time, but now it is over, and I have a normal life. Maybe better than any healthy person.
Never give up!
Stas Brynza"
23.03.2010 The fundraising for treatment of Anastasia Mikhailichenko
is over. We thank an anonymous woman from the parish of the Sts. Cosma and Damian Church, who has transferred
the entire needed sum for Anastasia.
22.03.2010 We are starting fundraising for the benefit of
orphan patient Nikita Ya.; he has not yet returned to
the hospital, but an important decision concerning further aid to this boy has been made.
After an examination at the Russian Children's Clinical Hospital and a consultation at the Bakulev Center for
Cardiovascular Surgery, it was decided that his rare and complex disorder should be treated abroad.
The surgical treatment and therapy will cost a total of 15,000 euro.
We are completing the fundraising for the benefit of Polina Danilyuk and
Dilyara Sibgatullina. Thank you for helping the girls
so quickly!
20.03.2010 Presently the required amounts of immunosuppressive and antiviral
drugs for patients of the Department of Kidney Transplantation have been purchased. During the
autumn and winter of 2009/2010, all children got the necessary drugs from personal and general
donations. Thank you for your help! We are removing the request for financial aid to patients of this
department from the first page of our Web site.
18.03.2010
Matvei Korzh is recovering after the third transplantation of hematopoietic stem
cells in his five-year-old life. He is currently being discharged from hospital for out-patient treatment. The physicians
and parents do their best to achieve stable remission. By the way, Matvei's brother was recently born!
17.03.2010 Our foundation has received an official letter from I.E. Volkov, Head of Department of Endocrinology
and Diabetology, and A.A. Bologov, Deputy Head Physician of Russian Children's Clinical Hospital:
"Among children getting intensive insulin therapy for diabetes mellitus type I, only about 5-7% patients in Russia have compensated
condition. The most rational and internationally acknowledged way of insulin administration, leading to better compensation
of the patients' condition and improving the quality of their life, is insulin pump therapy. However, the use of this method in
our country is very limited owing to high cost of insulin pumps: one pump with the complete set of peripherals and consumables
costs about 180,000 roubles (over $6000). For this reason, it would be fine if your foundation could consider purchasing
insulin pumps for young children from poor families in cases where there are absolute indications for this kind of therapy."
The Help and Charity Service of the Russian Children's Clinical
Hospital is launching a new program to help children with insulin-dependent diabetes.
16.03.2010 Some news about orphan patients of our hospital.
Inna N. has been discharged after successful completion of
her treatment. This time is lasted three months. It was a pity for us and for other children to part with Inna.
However, she didn't waste time: during her stay in Moscow, she managed to complete professional cooking courses!
Andrei S. has also left the hospital after completion of his
treatment. He first appeared at the Department of Traumatology and Orthopedics three years ago. He could not walk because
of a serious congenital disorder, and nobody hoped that his problems could be overcome. However, the physicians have managed
to achieve the impossible: Andrei left the hospital on his own legs!
Milena has come back to the hospital after a rehabilitation course. We missed
her very much!
12.03.2010 We whole-heartedly thank our friend Oleg L., who has paid for the expensive equipment
requested by the hospital: Mobile DaRt Evolution X-ray setup,
(about $500,000), Oxy Megastation apparatus for
correction of facial scars using microdermabrasion ($30,000), and multichannel
EEG appliance with video EEG function (€101,200). During the next two months, all this equipment will
be delivered to our hospital.
9.03.2010 The fundraising for the benefit of Nicole Manko
has been completed. We thank Sergei, who has provided the entire sum for buying the insulin pump and consumables.
The fundraising for Nastya Zhuravleva is also over. Many thanks to
all who have responded!
5.03.2010 Some news about orphan patients of our hospital.
Presently there are 20 children from orphanages at our hospital and rehabilitation center.
Six nurses hired by our foundation take care of them.
Five children have been discharged.
Denis K. has left the hospital after long surgical treatment and rehabilitation.
He will come to Moscow for further rehabilitation in April, but already to another hospital.
Katya M-va has received a trial course of therapy with new drugs.
The result was fine, and now she can leave the hospital for six-month out-patient treatment.
The boys from the Orel region have been discharged: Misha M.
has completed his treatment, and Vlad K. will be admitted
to the Department of Neurosurgery in May.
Anna O. has been discharged after several
successful operations at the Departments of Coloproctology and Urology. She has a complex
malformation, for which she will have to undergo long multistage treatment. So she will come
to our hospital several times.
12.03.2010 We whole-heartedly thank our friend Oleg L., who has paid for the expensive equipment
requested by the hospital: Mobile DaRt Evolution X-ray setup,
(about $500,000), Oxy Megastation apparatus for
correction of facial scars using microdermabrasion ($30,000), and multichannel
EEG appliance with video EEG function (€101,200). During the next two months, all this equipment will
be delivered to our hospital.
9.03.2010 The fundraising for the benefit of Nicole Manko
has been completed. We thank Sergei, who has provided the entire sum for buying the insulin pump and consumables.
The fundraising for Nastya Zhuravleva is also over. Many thanks to
all who have responded!
5.03.2010 Some news about orphan patients of our hospital.
Presently there are 20 children from orphanages at our hospital and rehabilitation center.
Six nurses hired by our foundation take care of them.
Five children have been discharged.
Denis K. has left the hospital after long surgical treatment and rehabilitation.
He will come to Moscow for further rehabilitation in April, but this time to another hospital.
Katya M-va has received a trial course of therapy with new drugs.
The result was fine, and now she can leave the hospital for six-month out-patient treatment.
The boys from the Orel region have been discharged: Misha M.
has completed his treatment, and Vlad K. will be admitted
to the Department of Neurosurgery in May.
Anna O. has been discharged after several
successful operations at the Departments of Coloproctology and Urology. She has a complex
malformation, for which she will have to undergo long multistage treatment. So she will come
to our hospital several times.
25.02.2010 Head of the Department of Endoscopic
Surgery A.V. Myzin has handed us a letter of thanks concerning cooperation between his
department and our foundation. A number of devices and instruments purchased thanks to the
help of our sponsors have enabled the doctors to improve the quality of treatment
and to implement up-to-date surgical technologies. He hopes for further efficient
and fruitful cooperation.
Presently this department needs certain appliances that are not extremely expensive but
still very important: to perform endoscopic operations on lungs and bronchi, the surgeons
need endoscopic snares and a balloon catheter. The total cost of these instruments
is about 60,000 roubles ($2000). See details...
18.02.2010 Some news about orphan patients of our hospital.
Presently 15 children from orphanages are getting in-patient treatment at our hospital, and
8 more children are at the new rehabilitation center. Nurses
hired by our foundation take care of 15 children.
Little Zhenya P. has returned to the
Department of Abdominal Surgery. He is 1.5 years old now. The kid is learning to speak.
He walks all over the department, smiles to everybody, and waves his little hand when
saying "Bye-bye".
Milena has left the hospital
to undergo a one-month rehabilitation course at the Detstvo health center.
16.02.2010 We have published the financial report on the work of
the Regional Public Charity Foundation for Seriously ill and Abandoned Children and aid provided to departments of the Russian Children's Clinical Hospital, patients and their families in 2009. The total sum raised
in 2009 exceeded 56,000,000 rubles (given the current rouble/dollar rate, it is about
1.9 million USD).
Continued...
15.02.2010 Fundraising for the benefit of Abdul-Aziz Amankeev has been completed. The medication for the boy has been purchased, and now it
will be handed to his mother. We thank the Charity Addresses society for helping the boy!
10.02.2010 Olya B-na has recovered after the surgery and left the hospital till April. When she arrives here again in the spring, she will undergo final medical manipulations of mostly cosmetic nature.
3.02.2010 Two teenagers from the Orel region have been admitted to the Department of Traumatology and Orthopedics within the
You Are Not Alone program. They are Vlad K. (14 years old) and Misha M. (11 years old).
2.02.2010 Our charitable foundation has received three applications from the hospital administration for purchase of up-to-date medical equipment. All three devices are equally necessary, and all three are very expensive: a mobile X-ray system, an apparatus for correction of cicatricial skin lesions, and a Multichannel EEG setup with video-EEG monitoring option. The total cost of all three devices is over 20.5 million roubles (given the current rouble/dollar rate, about $683,000). See the links above to read about each of these setups.
29.01.2010 When Milena
first came to our hospital from Yakutia in 2006, she was only five years old. Over all
these years, our foundation has been providing various kinds of aid to her. Milena
is our dear friend, and our new rehabilitation
center has become a real home for her.
On January 23, Milena celebrated her 9th birthday there. It was a real party with guests,
lots of presents, beautiful dresses and dancing. Milena said that it was the best birthday in her life.
See the photographs below.

28.01.2010 Anya O.
has been admitted to the hospital for follow-up treatment. We became good friends
with this active and merry girl when she was in Moscow last time. Now Anya is already 3.
She is quite a big girl, interested in books, especially in her favorite interactive book that "speaks"
bird and animal voices.
Olya B-na had rhinoplasty two days
ago. This is the final stage of her long treatment, which lasted almost four years. Presently
she is recovering after her surgical operation and looking forward to seeing its
results in the mirror.
27.01.2010 And sad news again. We have learned about the deaths
of Nikita Semenov and
Kolya Davydkin (the latter boy was not shown on the first page of our
Web site, because he mostly got financial aid for everyday expenses, not for treatment).
It is very painful to write about such things. But sad news are inevitable in our work.
It is sometimes difficult to live and work when you think about this. But we must
hold on, in memory of those who have passed away and for the sake of those who
are alive and should survive!
25.01.2010 On January 21, Vlada Drozdova
underwent bone marrow transplantation from an unrelated donor. We thank all people who
donated money for the girl and thus enabled the doctors to perform this transplantation
in due time!
The fundraising to buy the necessary drug for Vasilisa Vinokurova
has been completed. Thank you for your help and compassion!
20.01.2010 Some news about orphan patients of our hospital.
All children from the Orel region have been
discharged from hospital. Veronika P.
has also returned to her orphanage after the next successful stage of surgical treatment. For
1.5 years we could not even place her photograph on her page, because this girl
had virtually no normal face... Now the surgeons' skilful hands have created this face,
and you can see Veronika on our Web site.
Three children are back to the hospital after a break in treatment: Tanya K.,
Katya M-va, and little Masha S.
(after rehabilitation at the new center).
Andrei Sh. is going to have
follow-up surgery at the Department of Traumatology and Orthopedics. After the recent
preparative surgery, the boy has started learning to walk on crutches. The surgeons
say that this skill will promote rehabilitation after the future radical operation and
allow Andrei to start walking on his own in a shorter time.
14.01.2010 In the first days of January, we got tragic news from St. Petersburg:
Vadim Gritchin died. After bone marrow transplantation,
the boy developed severe graft vs. host disease, which could not be overecome by any existing
drugs. May this boy rest in peace. We wish strength and courage to his wonderful mother Anastasia.
13.01.2010 Some news about orphan patients of our hospital, who
get treatment within the You Are Not Alone program.
Rodion R. has been discharged
after a successful surgical operation on his eyes. The entire department dearly loved the boy.
He got a radio controlled toy car as the New Year present and was just amazed by it. Now
the boy is completely all right. See his page for his new photograph.
Nikita has returned to his
orphanage after an examination. The physicians have invited him for follow-up
examination in February, and we are looking forward to see this charming boy
again.
Four children from the Lipetsk region have been admitted to the Department of Traumatology:
Dima E. (6 years old),
Pavel N. (10 years old),
Ilya N. (6 years old), and
Natasha G. (10 years old).
And our old friend Olya B-na
has arrived at the Department of Maxillofacial Surgery for the final stage of
surgical treatment.
HAPPY NEW YEAR!
Arhiv (2005, Deutsch)